As far as I know, or have understood to date, these are treatments coming up ASAP. I hope this post will help straighten out my own muddled head - apologies should it turn out to be fairly un-readable, un-inteligible, un-interesting, or any other 'uns' available!
Targeted therapies for liver lesions and progressed bone issues are being organised - will know more about the former in around ten days. No idea as yet, oncologist not very forthcoming - probably has to get the OK from somebody or other.
Targeted therapy for further metastasis to bones will be a bone medication to be given every 3 months, by injection (Xgeva). This I do not relish, but neither do I relish a fracture of spine or rib! Horrendous side effects, including possible damage to jaw bone. Before agreeing to this medication I insisted on seeing my dentist - did so on Tuesday. The docs prefer patients who are about to use this med. to have any necessary dental work done before beginning treatment. So...my lovely dentist put my mind (reasonably) at rest about the jaw issue which I worried about a lot, due to the "clicky" jaw , right-hand side I already have. He also confirmed that there are no tooth issues to deal with. He recommended that I go ahead with the medication, as far as any dental matters are concerned. An appointment now has to be made for the first injection. First appointment has to be at a main Cancer Center, in a bigger town, half an hour's drive away; any injections thereafter will be done in our local Cancer Center.
Then there's an MRI to be done (sedated) tomorrow (Friday 24 July). This is for radiation planning I think, to expand on results in PET scan.
I shall not see either my oncologist or my radiologist until 5 August. Stuff about radiation, and other bone treatment will then be discussed with benefit of MRI results, which they will need. They've agreed that I can have a sedated MRI because I'll not be able to lie flat for an hour in the machine, due to increased back pain. With the knowledge, by 5 August, that I've had my first Xgeva injection, and with the MRI results, the docs should be in a position to plan ahead in more detail. I guess I shall learn about the liver treatment on 5 August too.
Beyond this, all is mystery.
Whinges: My pain is now considerably worse than it has ever been since this health saga began. Pain pills aren't working as efficiently - or so it seems. I'm suffering from awful nausea, "gagging" and complete loss of appetite, practically living on Boost. Trying to find something in medical marijuana that might help.
Targeted therapies for liver lesions and progressed bone issues are being organised - will know more about the former in around ten days. No idea as yet, oncologist not very forthcoming - probably has to get the OK from somebody or other.
Targeted therapy for further metastasis to bones will be a bone medication to be given every 3 months, by injection (Xgeva). This I do not relish, but neither do I relish a fracture of spine or rib! Horrendous side effects, including possible damage to jaw bone. Before agreeing to this medication I insisted on seeing my dentist - did so on Tuesday. The docs prefer patients who are about to use this med. to have any necessary dental work done before beginning treatment. So...my lovely dentist put my mind (reasonably) at rest about the jaw issue which I worried about a lot, due to the "clicky" jaw , right-hand side I already have. He also confirmed that there are no tooth issues to deal with. He recommended that I go ahead with the medication, as far as any dental matters are concerned. An appointment now has to be made for the first injection. First appointment has to be at a main Cancer Center, in a bigger town, half an hour's drive away; any injections thereafter will be done in our local Cancer Center.
Then there's an MRI to be done (sedated) tomorrow (Friday 24 July). This is for radiation planning I think, to expand on results in PET scan.
I shall not see either my oncologist or my radiologist until 5 August. Stuff about radiation, and other bone treatment will then be discussed with benefit of MRI results, which they will need. They've agreed that I can have a sedated MRI because I'll not be able to lie flat for an hour in the machine, due to increased back pain. With the knowledge, by 5 August, that I've had my first Xgeva injection, and with the MRI results, the docs should be in a position to plan ahead in more detail. I guess I shall learn about the liver treatment on 5 August too.
Beyond this, all is mystery.
Whinges: My pain is now considerably worse than it has ever been since this health saga began. Pain pills aren't working as efficiently - or so it seems. I'm suffering from awful nausea, "gagging" and complete loss of appetite, practically living on Boost. Trying to find something in medical marijuana that might help.