Showing posts with label PET scan. Show all posts
Showing posts with label PET scan. Show all posts

Thursday, July 02, 2020

Re 4 July

I'm not even going to wish the USA "Happy Birthday" this year on 4 July 2020, as I've done on this blog in most of the previous 16 years I've lived here, especially in those years after becoming a US citizen - 2008.

This is a vast, varied, very beautiful country, with potentiality to be a powerful force for good in the world. From time to time, over centuries and decades, it has managed to be just that. Right now, though, due mainly to the man who became president in 2016, the country's reputation has nosedived to a place between laughing stock and heartless would-be master of the world with a highly incompetent leader. "Incompetent", though, is too mild a word on its own, to get a clearer description, Google synonyms of the term - they all (and more) apply.

I do not understand why, somehow, the leaders and members of the Republican Party could not have rid the country of this man as a leader months ago? There have to be ways and means. He is doing the party's reputation no good, but its leaders seem afraid to take steps in that direction. "Home of the brave" they said? Hmmm!

There is, and has been for many decades, a dreadful level of racism here in the USA. There is also deep general inequality - not only among the African American communities, but also among the population as a whole, whatever their skin-shade or ethnicity. Until THIS area of general inequality of opportunity is adjusted nothing else will change in any concrete fashion. If this inequality were to be adjusted, and in an appreciable way - then all kinds of change could follow smoothly, it'd be a natural progression.

On a different topic - I managed to get my PET scan done on 30 June, 8 am, without too much difficulty, after days of anxiety bringing on nausea and even more loss of appetite than normal. I wasn't sure I'd be able to lie flat on a hard surface for 20 minutes during the scan, due to the joint and muscle pain I experience (side effects) - but I did, with the help of an extra pain pill. Now I must wait until my appointment with the doc. on 15 July for results. I guess there'll be something to deal with, but shall try not to let anxiety get the better of me, at least not for a few days!

Monday, May 04, 2020

Quick Update

The trip to Cancer Center in Lawton OK went quite well - scheduled for 2.15 and we were home before 4 o'clock. Boiling hot day here - car registered 97 degrees on the way there and 100 to 104 degrees on the way back!

The few elderly patients awaiting appointments were well-scattered in a large waiting room. All nurses and receptionists wore masks (as did we). Our temperatures were taken before entering, surprisingly, my husband was allowed in with me. I suspect this might be because we are not exactly "local", not regulars at that particular Center.

Blood test came first, then, after the usual blood pressure check, weigh-in, and questions about pain etc by a nurse,  we had a short wait to see the oncologist.

I didn't realise until we were back in the car, ready to leave, that the doc didn't mention blood test results, and I hadn't remembered to ask about them, so things must be alright on that score. I answered the usual questions on how things had been since my last appointment, then a chest and shoulder examination, along with (in relation to my joint and muscle pain) tests of my grip and joint strengths. All appeared as well as might be expected. Doc did ask if I'd like to change the estrogen-blocker medication, suspected of causing the joint pains.  I decided to leave as is, as the alternative was the first medication I took after my original breast cancer diagnosis, which seems like aeons ago now. That medication really didn't suit at all - side effect-wise.

PET scans have not been available for some time due to covid-19. Doc will check when these are expected to be possible again. At my request he quickly agreed that I should schedule a scan during the days before my next appointment with him, in order that a long period of awaiting the result would not cause me weeks of anxiety. I told him candidly about my current feelings. I'd like whatever time I have left to be as anxiety free as possible, to better enjoy what I can of it. I explained that, should there be more trouble discovered by a scan, I doubt that I could stand more surgery or stronger chemo at this stage. He was understanding and kindly. He said that he, as a doctor must always listen to his patients' own needs and feelings.

I shall await hearing from our local Cancer Center as to the date of my next appointment with the oncologist, and regarding schedule of a PET scan earlier that same week or so.

Thursday, February 27, 2020

UPDATE

First, I apologise for not visiting my usual blogs and Quora recently - I'm avoiding the computer as much as possible in favour of sitting in front of the TV listening to talk of elections and pandemics - not a good swap, by the way!

On the medical front - I saw my oncologist yesterday to explain the reasons that I'd felt I must cancel the PET scan he had ordered for 18 February. He was sympathetic, and understanding of my fear of being charged a large sum if I had attended for the scan and been unable to carry it out, fully or at all. His suggestion was that I re-book a scan and, to help with the pain in my shoulder and side, take a double dose of my pain pills before attending. He told me that, though in some hospitals when a patient has difficulty managing the scan, some type of "knock-out" med or anesthesia can be given, but this is not so in our hospital. So...I intend do a trial run at home. I shall take a double dose of pain meds, once they've taken effect I'll lie on my back, a hard floor for a while, to decide if the extra pills will be the answer to my discomfort problem with the scan procedure. I shall hope that I'm able get up from the floor afterwards!

A nurse made enquiries for me on the question of being charged many thousands of dollars for the scan if unable to carry it out in full, due to pain. She was told that there would be a charge, based on how much imaging had been possible in the time a patient could manage to remain in place. There might also be a charge for the special liquid one has to drink, concocted in specially personalised formula for each patient - that cost would be in the region of $175 - and definitely charged if the patient did not attend and did not cancel within 24 hours. None of that made me feel too confident!

I asked the doc. if I could wait for a couple of weeks or so before trying to do a scan, he agreed to this. It seems likely the appointment will be in late March, with an appointment to see the doc. again a couple of days later. I'm hoping that laying off the knitting for a while
longer, and avoiding much time on the computer might further improve the side and shoulder pain before scan time - always supposing that I'm not still lying on the kitchen floor trying to get up from a trial run!